Once you get there, the surgical care is amazing. Interestingly there was a thread on here that had similar comments and it was the same hospital. So this bit of care and support has been a real let down. I am very resilient and only ring if I am desperate and cannot take any more. But what has driven me mad is the contradictary advice I have been given along the way such as ring me if you feel unwell and I will do you as an emergency from the consultant but when you ring you get passed around and end up back at the arrhythmia nurses who tell me I am lucky I have not got to wait 12 months like some people tough it out and other phrases that can feel unkind when you feel so ill. I understand that there are many people waiting and I am happy to wait my turn as long as I am safe. 4 weeks becomes 12 weeks and urgent call back became 10+days and a collapse that needed urgent care. At all times I have been high priority for next stage and should not have had to wait very long in normal times but because of COVID there were delays. Then 10 days later I collapsed and had to be blue lighted to hospital and have node ablation repeated as emergency. 12 weeks later node abalation which failed. CRT-p device fitted March this year but not switched on. Have had continuous rates of above 130bpm for 9 months developed heart failure 8 admissions to hospital including a week over Christmas and on maximum drug doses. Had break from A Fib for 8 months but Fleccainide dropped rate to 30sbpm so stopped that and heart has gone crazy. I am nervous about stroke/TIAs as I initially had no anticoagulants due to low CHADS score and had a series of them when I started with A Fib.
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